Valérie hits the wall emotionally every time her symptoms flare up.
Written testimony
Les rechutes, c’est ce qui est vraiment le plus difficile avec la COVID longue … parce qu’on ne sait jamais si on va vraiment revenir comme on était avant la rechute. Puis on ne sait jamais dans combien de temps non plus … Mais comme je dis, quand j’arrive dans une rechute, que là je frappe un mur et que je régresse énormément puis t’sais c’est sûr que quand qu’on vit des rechutes, bien en tout cas, pour ma part, les symptômes reviennent tellement en force, que non seulement je ne suis plus capable de faire qu’est-ce que j’étais capable de faire avant la rechute, mais en plus de ça, je dois composer avec des symptômes qui rendent ma vie très désagréable comme des sensations de brûlure, comme si j’avais un coup de soleil sur tout le corps. Des douleurs musculaires, articulaires, des maux de tête, tellement intense, que juste la lumière le soir, c’est l’enfer! L’hyper sensibilité sensorielle devient juste complètement hors contrôle, au point où je dois passer une grosse partie de ma soirée dans ma chambre, dans le noir, avec pas de bruit, rien. Ça, c’est les moments que je trouve le plus difficiles parce que je me retrouve encore dans une espèce de bulle de solitude, qui m’amène à … qui génère énormément d’anxiété aussi à ces moments-là, parce que justement t’sais on… Je ne peux comme rien faire, parce que là, je suis comme en surcharge. Puis à ce moment-là, c’est très facile pour le cerveau commencer à spinner comme on dit. À réfléchir à toutes sortes d’affaires puis se faire toutes sortes de scénarios.
[Relapses are really the hardest thing about long COVID … Because you never know if you’re really going to come back the way you were before the relapse. And you never know how long it’ll be before you’re back … But as I say, when I reach the point of relapse, I hit a wall and I regress enormously, and you know, it’s clear that when you’re experiencing relapses, well in any case, for my part, the symptoms come back so strongly, that not only am I no longer able to do what I was able to do before the relapse, but on top of that, I have to deal with symptoms that make my life very unpleasant, like burning sensations, as if I had a sunburn all over my body. Muscle pain, joint pain, headaches, so intense that just the light at night is hell! Sensory hyper-sensitivity just goes completely out of control, to the point where I have to spend a large part of my evening in my room, in the dark, with no noise, nothing. Those are the times I find the most difficult, because I’m still in a kind of bubble of solitude, which leads me to… which also generates a lot of anxiety at those times, because, you know… I can’t do anything, because I’m on overload. Then it’s very easy for the brain to start spinning, as they say. Thinking about all sorts of things and then making up all sorts of scenarios.] Translation from original French.
More content
- Mental Health Support – ValérieValérie had limited mental health support because she had to pay out of pocket.
- Getting Care for Long COVID – ValérieValérie made repeat visits to ER because she couldn't get help elsewhere.
- Complementary and Alternative Care – ValérieValérie gained a sense of control over her symptoms with the help of her kinesiologist.
- Support From Family, Friends, Communities – ValérieValérie notices her supporters running out of steam.
- Impacts on Children and Parenting – ValérieValérie wishes her children didn't have so much responsibility.
- Loss of Income and Need for Financial Support – ValérieValérie is afraid of falling into the hole of an unrecognized illness.
- Loss of Income and Need for Financial Support – ValérieValérie was studying to become a teacher. There was no teaching during lockdown so she was not entitled to employment insurance.
- People with Long COVID Advocating for Themselves – ValérieValérie is fighting to get her disability recognized after her application for social assistance was refused.
- Advice to Others Living With Long COVID – ValérieValérie warns that pushing yourself too hard can have long-term negative consequences.
- Psychosocial Impacts – ValérieValérie hits the wall emotionally every time her symptoms flare up.